Name of the service PreciseMed VRE (PRECISE VRE)
Description of the service A virtual research environment specifically tailored for Precision Medicine, that seamlessly integrates medical and biological data.
Data controller and a contact INESC-ID Lisboa
You can contact our team here.
Jurisdiction PT Portugal
Personal data processed A. When you create or update your PRECISE VRE user account, we collect and store this “Account Data”. The Account Data stored is listed below in its entirety:

  1. From your Home Organisation:
    • your ELIXIR Username (user-chosen identifier)
    • your Name
    • your E-mail address
  2. From yourself:
    • your Website (optional)
    • your Biographical Info (optional)

B. Following data is gathered on other circumstances:

  1. When accessing restricted services (services requiring an authenticated user):
    • your IP address and Hostname
  2. When using the contact form:
    • your First and Last names
    • your E-mail address
Purpose of the processing of personal data A. Account Data:

  • your ELIXIR Username – Will be stored as your nickname, to give you the option of setting your display name to something other than your username or real name.
  • your Name – is your primary display name in the service.
  • your E-mail address – used as your unique identifier, to generate your username, and for communications about the PRECISE VRE, your published resources and related comments.

B. Other Data:

  1. When accessing restricted services:
    • your IP address and Hostname – temporary (30 days) collection in the logs, for security auditing of the services.
  2. When using the contact form:
    • your First and Last names – will be used to identify you in our reply.
    • your E-mail address – will be used to contact you with our reply.
Third parties to whom personal data is disclosed None of your collected personal data is disclosed to a third party.
How to access, rectify and delete the personal data VRE Users can access and rectify their personal data, when logged in, through their profile page. To completely delete your data, reach us via our contact form.
Data retention Personal data is deleted on request of the user or if a user has no published content and hasn’t used the service for five years.
Data Protection Code of Conduct Your personal data will be protected according to the Code of Conduct for Service Providers, a common standard for the research and higher education sector to protect your privacy.